The Conversation Project is a public engagement initiative with a goal that is both simple and transformative: to have every person’s wishes for end-of-life care expressed and respected.
Too many people die in a manner they would not choose, and too many of their loved ones are left feeling bereaved, guilty, and uncertain.
It’s time to transform our culture so we shift from not talking about dying to talking about it. It’s time to share the way we want to live at the end of our lives. And it’s time to communicate about the kind of care we want and don’t want for ourselves.
We believe that the place for this to begin is at the kitchen table—not in the intensive care unit—with the people we love, before it’s too late.
Together we can make these difficult conversations easier. We can make sure that our own wishes, and those of our loved ones, are both expressed and respected. The Conversation Project offers tools, guidance, and resources to begin talking with loved ones about your and their wishes.
The Conversation Project began 2010, when Pulitzer Prize-winning writer Ellen Goodman and a group of colleagues and concerned media, clergy, and medical professionals gathered to share stories of “good deaths” and “hard deaths” within their own circle of loved ones.
Goodman founded the nonprofit after serving as caregiver to her mother with Alzheimer’s disease for many years. She and her mother had never discussed end-of-life care, but in the end the care decisions fell to Ellen. “I realized only after her death how much easier it would have all been if I heard her voice in my ear as these decisions had to be made,” she recalls.
Over several months, a vision emerged for a grassroots public campaign spanning both traditional and new media that would change our culture. The goal: to make it easier to initiate conversations about dying and to encourage people to talk now, and as often as necessary, so that their wishes are known when the time comes.
To make this vision a reality, The Conversation Project began its collaboration with the Institute for Healthcare Improvement (IHI) in September of 2011. IHI is a not-for-profit organization that helps lead improvement of health and health care throughout the world. Today, The Conversation Project is run by Ellen Goodman and IHI staff with support from many expert advisors.
The Conversation Project team wishes to acknowledge the generous assistance of the countless individuals who provided insight, advice, and encouragement as we prepared to launch our national campaign. Along the way, they shared resources, knowledge, and experience giving us leads, making connections, and focusing our work. Not surprisingly, they almost always shared their own personal stories, stories that underscore the importance of answering the question: “Have you had the conversation?” To each of you, our thanks.
By the Numbers
While 92% of Americans say it’s important to discuss their wishes for end-of-life care, only 32% have had such a conversation. 95% of Americans say they would be willing to talk about their wishes, and 53% even say they’d be relieved to discuss it (The Conversation Project National Survey, 2018).
More than 340,000 people, from all 50 states and 160+ countries, have downloaded our Conversation Starter Kit, which is available in English, Arabic, French, German, Haitian Creole, Hebrew, Hindi, Japanese, Korean, Chinese, Portuguese, Russian, Spanish, and Vietnamese.
More than 740,000 people have visited The Conversation Project website since its 2012 launch.
Frequently Asked Questions
How can I get involved?
Start by having conversations with your loved ones about your and their end-of-life care wishes; The Conversation Starter Kit is a free resource to help guide you through the process.
If you’d like to get more involved, we encourage you to first check out our Community Getting Started Guide. This is a great way to begin planning for how you can engage community residents in end-of-life care conversations and how to partner with other organizations in your region to promote this work.
You can also join our monthly webinars for community leaders. Sign up for our Community Engagement Newsletter for more information. Additional resources are available on our Community Resource Center.
I’m interested in presenting about The Conversation Project. How do I get started?
We offer quarterly, virtual speaker trainings that will prepare you to present on The Conversation Project and lead a Starter Kit workshop. Sign up for our Community Engagement Newsletter to receive more information. Additionally, our Community Resource Center has a standard slide deck and suggested activities you can use for your presentation.
How do I sign up for the monthly Conversation Project community webinar?
Sign up for our Community Engagement Newsletter to receive information on how to join the trainings; no further registration is required.
How do I get copies of your materials?
All of our materials, including the Conversation Starter Kit, are available to download and print for free. Professionally printed copies are also available for purchase through our online, Mimeo Marketplace.
How can I support The Conversation Project?
The Conversation Project depends on foundation grants, corporate sponsorships, and individual contributions to fund its work. If you would like to support our campaign, please consider a tax-deductible gift to honor a loved one’s memory. Donations can be made online.
May our organization post a link to your website?
Absolutely. Feel free to provide a link to our homepage (http://theconversationproject.org/) or directly to our Starter Kits page (http://theconversationproject.org/starter-kits/). We do not, however, allow PDFs of our Starter Kits to be posted on external websites.
If you would like to receive a custom URL, so that we can track the number of people clicking on the link and provide this information to you, please email email@example.com.
Please refer to our branding guidelines for more information.
How can I request to have someone from The Conversation Project speak at my event?
Please complete the Speaker Request form and send it to firstname.lastname@example.org to tell us more about the event you are planning. If possible, we’ll then make a recommendation on the best speaker for your event. Please note that because we are a small team, we can only accommodate a limited number of speaking engagements.
How can I request an interview for my article, radio program, etc.?
Please send all media inquiries to email@example.com.
What is the relationship between The Conversation Project and National Healthcare Decisions Day?
NHDD is an initiative of The Conversation Project. NHDD’s founder, Nathan Kottkamp, continues to be involved, while we are responsible for the management, finances, and structure of NHDD.
What if I have additional questions?
Please email us at conversationproject@IHI.org.
We want to hear from you! E-mail or send us snail mail using the information below.
By Email: conversationproject@IHI.org